Category Archives: Latest

Invitation to participate in research by Ulster University

Are you a parent with a poor cancer prognosis or have lost your partner to cancer and have children under the age of 18?

We would like to invite you to take part in a one-to-one interview to hear about your family needs during this time.

It will take approximately one hour.

When and where? At a time and place convenient for you.

Why? By talking to you about your experiences we hope to improve the support we give others in the future.

If you would like more information or wish to participate in this research please contact Jeff Hanna from the family centered care team on 028 9036 8355 or hanna-j25@ulster.ac.uk 

Cancer Patient Experience Survey 2018

We are carrying out a survey of cancer patients in Northern Ireland to find out what you think about the cancer care that you receive.

Around 6,000 people in Northern Ireland, diagnosed with cancer and discharged from hospital between May and October 2017, have received a letter asking for their views about the care they received during treatment. If you receive one, we really do want to hear your views so please send it back and have your say.

By participating in this survey , people affected by cancer can have a direct, personal impact on the standard of care provided in Northern Ireland. It is an entirely confidential process and can be completed by post or online.

If you receive a questionnaire we hope that you will fill it in, but if you do not want to participate, or if you have any questions please call our Freephone Helpline on 0800 783 1775 (Mon – Fri, 9am – 5pm).

The Northern Ireland Cancer Patient Experience Survey 2018 is being run on behalf of the Public Health Agency and Health and Social Care Board with the support of Macmillan Cancer Support. Quality Health is an NHS health survey company who are supporting the administration and analysis of the survey.

 

 

 

 

 

 

NiCaN – Please join us to have your say…

 Please join us to have your say…

Are you an adult who has had experience of chemotherapy or radiotherapy as treatment for cancer either as a patient or carer?

The Northern Ireland Cancer Network is a partnership of health service organisations, charities, cancer specialists and service users. We work together to deliver safe and effective care, improve cancer clinical outcomes and enhance patients and carers experience and quality of life.

We want to listen to and understand the experiences, views and needs of people affected by cancer, so that we can provide services that best meet those needs.

 We would love you to join us for an event where you will have the opportunity to:

  • Tell us about your experience of chemotherapy and radiotherapy cancer treatment
  • Meet and talk to other people affected by cancer

Where and when?

Date: Monday 21st May 2018

Venue: Ross Park Hotel, Antrim.

Time: 1pm to 4.30pm

Tea, coffee and sandwiches served on arrival.

To guarantee a place please contact Caitriona Livingstone at Northern Ireland Cancer Network by 17th May 2018

Email: nican.office@hscni.net

Tel: 028 95 363 305

Fatigue Management Workshop

Fatigue is a very common problem for people with cancer. It can leave you feeling very tired and exhausted all or most of the time. There are things you can do to help manage your fatigue, for example, by changing the way you plan and fill your day.

This workshop programme aims to help you understand what causes fatigue, how it affects you and to recognize your own triggers. At the workshop you will also be able to find out about other support available and learn from each other.

Who is the programme for?

Any adult experiencing mild to moderate cancer-related fatigue can apply. This is a group programme for approximately 15 people. A family member or a friend can accompany you.

Who runs the group?

The workshops are led by a team of Northern Trust Health & Social Care professionals including occupational therapists, physiotherapists, dietitians, social workers and the Macmillan Information and Support Manager. Each workshop will have different professionals leading the session.

We aim to make the workshops informal, practical and enjoyable. A variety of activities such as presentations, discussions, video clips, relaxation techniques and exercise sessions are used.

Tea/coffee will be served at each workshop.

When is the next workshop?

Dates: September 2018

Time: 2:00pm – 4:30pm

Venue: Broughshane House, 70 Main Street, Broughshane, BT42 4JW

Contact Details

For queries or more information please contact Julie Kennedy, Macmillan Health and Wellbeing Support Worker, Telephone: 028 9442 4046 or  Email: CancerInformation@northerntrust.hscni.net

CLIMB – Children’s Lives Include Moments of Bravery

What is CLIMB®?

CLIMB® is a programme for children aged 5—11 years old whose parent or a significant other (e.g. grandparent, aunt or sibling) in their life has a cancer diagnosis.

CLIMB® is run over 6 weeks and held in the evenings. It’s an enjoyable, sharing, interactive experience and a time for the children to come together to deal with their feelings. Throughout the programme the children will develop an understanding of cancer and from this the myths and fears that children can hold about cancer will be dispelled. The groups are creative, using drama, arts and play. They are based on having fun together and meeting new friends.

Parents / carers attending with their children will have the opportunity to chat and relax in an adjoining room.

To register please contact: Julie Kennedy, Macmillan Health and Wellbeing Support Worker, Tel: 028 9442 4046 or email: CancerInformation@northerntrust.hscni.net

The NI Cancer Trials Network launch their new website

The NI Cancer Trials Network (NICTN) is delighted to announce the launch of their new website www.nictn.hscni.net The website provides information about the work and services of the NICTN and profiles the current cancer clinical research portfolio. For further information pelase contact the NICTN via the website, or at the Co-ordinating Centre at nictn@belfasttrust.hscni.net. The website will be further developed over time to provide more resources for reseachers. All comments or feedback about the website are very welcome.

 

 

 

 

New Information video launched to help Radiotherapy Patients

A new patient information video outlining what a person can expect from radiotherapy has been launched by the Belfast Health and Social Care Trust’s radiotherapy department at the Cancer Centre, with the support of Friends of the Cancer Centre.  It is particularly useful for patients before they start their radiotherapy treatment to help break down some of the fear, uncertainty and misunderstanding that often surround this form of treatment.

As well as explaining what exactly radiotherapy is, the video follows a patient from their arrival at the Cancer Centre, throught the treatment planning process and shows what can be expected from the treatment itself.  Useful information on parking passes, support services and other facilities in the hospital are also covered the ensure that the patient has all the information available before their first appoinment.

The video can be viewed at: http://www.friendsofthecancercentre.com/news/2016/new-information-video-launched-to-help-radiotherapy-patients/

Your story – Your Words

Everyone has a story to tell and we’d like to invite you to record yours in a friendly and informal session with an oral historian.  It’s an opportunity to talk about anything you like and we’ll give you copies to share with family, friends, and loved ones, all free of charge.

The service is available to people with cancer, and those with other life limiting illnesses.

If you would like to arrange a recording, or find out more information about our Oral History Service, please contact the Volunteer Co-ordinator at the Macmillan Unit, Antrim Area Hospital 028 9442 4000 ext 336531

Bra Fitting service, Ballymoney

Cancer Focus NI provide a personal and confidential Bra Fitting service for women who have had breast surgery.  Staff are fully trained and can help you choose the right bra that fits and feels comfortable.  Consultations take place at the Robinson Hospital, 23 Newal road, Ballymoney.

For a fitting appointment contact Christine O’Hagan 07933202131